Perspectives of Caregivers of Patients with Dementia and the ...

Work thumb

Views: 21

  • Title: Perspectives of Caregivers of Patients with Dementia and the Potential Role of IT to Improve Communication with Providers
  • Author(s): Nicole Ruggiano, Ellen Brown, David Geldmacher, Peter Clarke, Vagelis Hristidis, Jessica Bertram
  • Publisher: Common Ground Research Networks
  • Collection: Common Ground Research Networks
  • Series: Aging & Social Change
  • Journal Title: The Journal of Aging and Social Change
  • Keywords: Dementia, Caregivers, Caregiving, Family-centered Care, Alzheimer’s Disease, Health Communication
  • Volume: 9
  • Issue: 3
  • Year: 2019
  • ISSN: 2576-5310 (Print)
  • ISSN: 2576-5329 (Online)
  • DOI: https://doi.org/10.18848/2576-5310/CGP/v09i03/25-38
  • Citation: Ruggiano, Nicole , Ellen Brown, David Geldmacher, Peter Clarke, Vagelis Hristidis, and Jessica Bertram. 2019. "Perspectives of Caregivers of Patients with Dementia and the Potential Role of IT to Improve Communication with Providers." The Journal of Aging and Social Change 9 (3): 25-38. doi:10.18848/2576-5310/CGP/v09i03/25-38.
  • Extent: 14 pages

Abstract

While family-centered care (FCC) has received increasing attention for its importance in Alzheimer’s disease and related dementia (AD/RD) care, little is known about AD/RD caregivers’ experiences in interacting with health care providers. To address this issue, this qualitative study involved eighteen in-depth, semi-structured interviews and a focus group with another eighteen AD/RD caregivers in Alabama (USA) to learn about their perceptions on communicating with health care providers. Caregivers were also asked about their perceptions on how information technology (IT) may play a role in facilitating their interactions with providers. The findings indicate that AD/RD caregivers often feel that communication with providers is inadequate and compromises shared decision-making. They reported that the use of IT could facilitate caregiver-provider communication.