Participatory Research Methods to Facilitate Democratic Health Research

Abstract

Participatory research methods are tools of data collection, analysis, interpretation, and dissemination that engage those with lived experience in the research process. In this workshop presentation, we share an overview of participatory research methods, a model of research choice points, and a foundational tool that supports the use of participatory research methods. 1) The “choice points” model of participatory methods emphasizes the intersection of desired level of participation and the stages of the research process. Intentional choices of participatory research methods, tools, and processes help researchers engage stakeholders and communities more meaningfully in research and encourage research that matters to the focal population. 2) The Report of Engagement in Community Research (REACH) is a tool intended to enable community-academic research teams to both plan and assess precisely how and when academic researchers engage with the community during each phase of a project’s research process. The tool allows users to enter choice points into a spreadsheet that translates to a graph illustrating community engagement along the research timeline. The tool also allows space for community-academic research teams to describe research methods and justify their collaborative choices. The workshop will include small group interactive exercises to engage attendees in applying the choice points model and using REACH to both collaboratively plan research and report on how community members can be engaged in the research process.

Presenters

Lisa Vaughn
Professor, Pediatrics, Cincinnati Children's Hospital Medical Center/University of Cincinnati College of Medicine, Ohio, United States

Details

Presentation Type

Workshop Presentation

Theme

2024 Special Focus—Health for Democracy, Democracy for Health

KEYWORDS

Participatory Research Methods, Publishing Participatory Methods, Stakeholder and Community Engagement in Research, Shared Decision Making in Research

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