Aging & Social Change: Tenth Interdisciplinary Conference

Abstract

This research explores the results of a qualitative study of 15 parents, age 60 years or older, who were the primary caregiver for, and currently living with their adult child with an IDD. Findings reveal that parents feel fortunate and find meaning in their caregiving role. While worry and stress have impacted their lives, a majority reported this stress as being off-set by having a positive outlook. In thinking of their future, all of the caregivers reported feeling scared on who would take over the caregiving role for their adult child with IDD upon their death. Caregivers recommended that entities, such as the Regional Center provide future planning guidance and resources, and that public or private specialized case managers be available to manage their adult child’s future care. With adult children with IDD and their parents living longer, this study discusses the unique opportunities and challenges these trends present for the family unit and society in general.