Abstract
Health care delivery for children with medical complexity (CMC) remains fragmented, limiting the potential to achieve optimal health and developmental outcomes. Coordinating services is an essential part of their care but too often falls on their families to provide. The system is stressful, unpredictable, and not easily navigated. Care coordination efforts for CMC often are housed in a single organization, resulting in an persistence of unmet family needs. Social determinants of health must be included to support the overall health and wellbeing of the child and family. We designed a system, using human-centered design (HCD) to rethink the process of care coordination for CMC. The goal is to integrate and support care across all sectors to achieve optimal health. From our research, we determined the following: – A clear, adaptable and scalable roadmap and framework that we developed for organizations and communities, can be implemented across sectors. Service integration can be predictably and designed IN, across multiple sectors, including medical, education, financial, and community services. When the pathways are designed, the provider ecosystem creates meaningful touchpoints with the patient throughout the care continuum. Integrated care for CMC requires a series of feedback loops across multiple sectors to allow the system to adapt, measure and deliver care more effectively. The care coordinator’s task is to actively manage the information and processes in the feedback loops. HCD methods can bring together a coalition of cross-sector stakeholders to achieve care integration and requires disruption of the current system. We share the journey.
Details
Presentation Type
Paper Presentation in a Themed Session
Theme
2020 Special Focus - Advocacy in Design: Engagement, Commitment, and Action
KEYWORDS
Care integration, Human-centered design, Systems thinking, Health care
